Ian posted the following on September 3 in Mulan's thread,
http://www.jehovahs-witness.com/6/77754/1.ashx
(There are now multiple "Dansk" threads.)
((((((((((EVERYONE))))))))) This morning I had a meeting with the professor and he examined me thoroughly again. He told me that there is no infiltration into my bone marrow but that the swelling on my chest, under my arm and into my neck has increased. He wants me to take part in a phase III trial, which consists of taking two chemotherapy drugs, Fludarabine and Cylophosphamide, along with a monoclonal antibody. I have been given some forms which outline the treatment. Page 1 says: "This study is being offered to all patients with Mantle Cell Lymphoma who need treatment and have not previously been treated." Page II mentions that some participants will receive Fludarabine and Cyclophosphamide without the monoclonal antibody. Others will receive all three. Tablets will also be given to allay any nausea and an antibiotic for the prevention of a particular type of chest infection (it doesn't mention which type). I'm just letting everyone on the list know. As you are aware, I am against having chemotherapy but I may have no choice now. My spleen has become enlarged and the professor says now is the best time to receive treatment. He says that if I leave it any longer I will likely deteriorate and then the treatment might not work. I've been trying to go as long as I can without treatment. This is the hardest decision I've ever had to make. However, I intend to leave it as long as possible, in order to continue receiving your energies AND because I have an appointment to see a Tibetan doctor on 25 September, in Birmingham (UK). In a month's time I should be better aware of my condition and the methods I need to pursue. Your prayers/good wishes/healing vibes are PRECIOUS to me. I thank you from the root of my soul. Love, Ian
Ian ---
I have no idea what a monoclonal antibody is, but my friend on another forum who has NHL is very excited about this.
Are you still scheduled for the appointment at Christie hospital tomorrow?
Praying for you to have wisdom as you weigh your treatment options.
Hugs,
Marjorie