hi, i was wondering if anyone on the board is familiar with this.
my father in law seems to have this.
hes 57 years old and alot of the family thinks hes just a dead beat but some of us know he is really sick.
Such a good point BrendaKevan has finally started asking "are you feeling poorly or are you pissed at me?" instead of assuming I'm pissed.So many times do not understand that being in pain takes all your strength and it's hard to have a pleasant personality at the same time. Good he understands and allows you the room to do what you need to do.
Heh heh... it's only taken him 7 years to get there! But at least he has. A huge relief unto itself.
hi, i was wondering if anyone on the board is familiar with this.
my father in law seems to have this.
hes 57 years old and alot of the family thinks hes just a dead beat but some of us know he is really sick.
(((( Lilly )))) Good rant! We all need a good one once in a while. Especially around people who understand.
Kevan has finally started asking "are you feeling poorly or are you pissed at me?" instead of assuming I'm pissed.
just to let you all know why i won't be able to post for some time...i am finally getting in to the hospital for a much-needed operation that kept being postponed.
i have been back and forth to three different hospitals and various doctor's offices for tests, x-rays, consults and then more pre-op tests and x-rays.
(i have never heard of "nuclear testing before now...i wondered if they were going to send me to nasa!
((((( Annie ))))))
Happy Happy Happy Birthday Toooooo Yooooouuuuuuu!!!!!!!!
And Manny Moore!
*Muah!*
hi, i was wondering if anyone on the board is familiar with this.
my father in law seems to have this.
hes 57 years old and alot of the family thinks hes just a dead beat but some of us know he is really sick.
I was very healthy until I started getting strange pain symptoms in different areas of my body. Prior to that, about a year, I had an illness I could not get rid of. The Dr. said it was the Epstein Barr Virus. I had a cough and fever and felt "achy" for about 2 months then it went away. Within a few months, the fms symptoms started. Did you have anything like this?
Yes! I was tired for years. Then I had a bout of migrating symptoms bronchitis, sore throat, sinisitis, aches and pains, swelling, low grade fever, etc., for 2 or 3 months. Common with all of this was extreme fatigue. The doc-in-a-box was stumped until I asked if I might have Mono (Epstien Barr). They concured it probably was after looking it up in their medical manuals.... never had a blood test to check for sure. That was the start for me. I doubt it was my first case of Mono, probably a flareup of the virus. That was fall 1992. I got better but was still always fatigued. In Feb 1996 I collapsed and couldn't get out of bed. I don't recall pain, I just recall being sooooo tired that I couldn't function.
Nowman, I understand your fa-in-law feeling like a ne'r-do-well because he can't work. I had a lot of issues to address and get over when I was no longer able to work. Our society hangs a lot of our self-esteem by our careers and our income. And since I developed my career in computers after being a H.S. pull-out (1973 time to pioneer), I was really proud of myself and my accomplishments. I was still young and it was extremely frustrating to no longer have the energy and the thinking capacity that I used to have!
It's similar to a person who dedicated themselves to their work and retire and suddenly find themselves without the esteem of the career, and without interests or hobbies outside of work.
my mom called last night to tell me he passed on sunday.
he died peacefully and fairly painlessly.
my mom said she was talking with him, went to answer the phone, and 5 minutes later he was gone.
Thank y'all sooo very much. And a special thank you to the Vigil Aunties (and Uncles) group! I appreciate you ALL soo much.
hi, i was wondering if anyone on the board is familiar with this.
my father in law seems to have this.
hes 57 years old and alot of the family thinks hes just a dead beat but some of us know he is really sick.
Oh, and FMS is not just a chemical imblance. The pain center in the brain is out of whack and sends out pain signals that don't exist. It's similar in many ways to phantom limb pain syndrome in amputees where they still fee pain in a limb that doesn't exist.
hi, i was wondering if anyone on the board is familiar with this.
my father in law seems to have this.
hes 57 years old and alot of the family thinks hes just a dead beat but some of us know he is really sick.
I have FibroMyalgia. FMS for short. many have probably also heard of Chronic Fatigue Syndrome - this is the flip side of the illness. That always tired, sometimes the brain is fine and the body is a lump that had a difficult time moving because of muscle fatigue. Sometimes the body is fine but the brain wont function. A real pain in the arse and everywhere else! I was diagnosed 10 years ago after dealing with what others have said: Oh you're just depressed - well duh!, it's in your head! There's nothing wrong with you. etc.
I just won my Social Security Disability last October - what a relief! I couldn't even handle 15 hours a week of sitting as a secretary!
I've also been on just about everything out there except narcotic pain meds. the narcotic pain meds can help periodically, but the are highly addictive and easy to build up a tollerance to - that is why so many people with FMS end up on Morphine!
THE two drugs that have helped me the most are Effexor XR - a time released antidepressand (seratonin reuptake and ephinephren reuptake inhibitors) and Klonapin for the restlessness and body jumpies I get at night that preclude a good night's sleep. But I have built up a tolerance to the Klonapin(relative of valium).
I am also on the Medical Marijuana program in Oregon where it's medically legal. I have had the MOST relieve with the least side effects from MMJ than any other drug or potion I've taken. It works with seratonin and dopamine. Some of the canabanoids are highly anti-inflamatory. Others work as muscle relaxers.
I have clinical proof that MMJ is working for me: a year ago I had my annual blood work done, and I still had elevated platelet count, elevated sed rate and a couple other elevated chemicals... all pointing toward inflamation that my Rheumatologist and I could not locate. I've had these elevations in my blood work since 1996! 10 years of information.
This year, my blood work was normal across the board! No inflamation showing up at all! And over the years I had been on Nsaids (Non-steroidal antiinflamtories) like Relafen, Naproxen, Celebrex, etc., with minimal results. Even steroids, with no results.
MMJ is NOT a cureall majik bullet. But it has provided me with the most relief for my symptoms.
I take 3 activated capsules of herb at night when I go to bed. Then I inhale some for immediate relaxation in bed (I use a vaporizor so the material never burns). I seldom take any during the day unless I'm in a a lot of pain and I'm not going anywhere. Even out and about I'll take a couple drops of extract which will ameliorate the pain without the stoney side effects.
I have to grow my own and I make my own capsules and extracts.
And MJ is NOT deadly. Viagra has more deaths associated with it than MJ does! (2,290 to 0)
NOW besides the points above, I do not recommend breaking the laws in your area. If you live in an MMJ state, get legal. If you do not live in an MMJ state, make it legal!
<putting away soapbox>
my mom called last night to tell me he passed on sunday.
he died peacefully and fairly painlessly.
my mom said she was talking with him, went to answer the phone, and 5 minutes later he was gone.
He said he was doing ok.........she had ill health for awhile..........and he had already buried her so many times in his head.
Purplesofa - this just sunk in. Yes! That's how it feels. Thank you.
my mom called last night to tell me he passed on sunday.
he died peacefully and fairly painlessly.
my mom said she was talking with him, went to answer the phone, and 5 minutes later he was gone.
Thank you all soooo much!
I'm actually starting to look forward to the funeral. I hope there are a couple of old friends there. Ok. so I'm wierd. Part of it is that there is a local ApostFest being held that evening! I can't think of a better thing to "have to" attend after a JW funeral! Yeah, I know, it's my dad I'm talking about. Either I'm really deeply in shock about it and it hasn't sunk in yet... or the bulk of my grief is already past. About as odd as I am, I guess.
The day we arrived home from England holiday (2am) we attended the funeral of a dear friend of ours (not at all JW). Black was NOT allowed. The service was a simple memorial led by his stepdaughter, with several family and friends who spoke fondly of Glenn. Glenn once said that when he dies he wanted to be cremated and put in the pepper shakers at The Benson Hotel Restaurant - a 5star restaurant and luxury hotel in downtown Portland. Well, his stepdaughter went to the restaurant manager and laid out her request and the manager GAVE her 6 (each held 1 cup) crystal and gold plated pepper shakers. And THAT is what Glenn was contained in for the service! Each close family member gets a shaker of Glenn. The service was held at Scappoose airport - a small regional field where he worked at Sport Copters. Friends of his did a flyby (airplanes) then flew by in the Missing Man formation as a bagpiper played Amazing Grace. Not a dry eye in the place, and not an unhappy unappreciative person there, either.
I wish my dad's funeral could be like this.
those who have my home email, then by all means keep in touch.
i will see you around, i just have to take a long time off from here.
i need to re-group and reprioritize.
Take care ((((Sparky)))) and we'll see you around when you're ready.
Love and hugs
Brenda
