Me and my feet - the good and the bad news

by Lady Lee 28 Replies latest jw friends

  • Country_Woman
    Country_Woman


    I surely hope they/you find a solution.

    This all is simular to what a friend of mine has to endure.

    At the moment she is with a manual therapeut for podo-orthesiologie, who found out that one of her legs is slightly shorter then the other one - so he gave her custom made orthotics and adviced her to take glucosamine. Seems it is helping a bit: she is sleeping better.

    What medicine did your Dr subscribe to you ? Deze foto afdrukken...

  • cyberguy
    cyberguy

    It hurts Lady Lee, to hear of you're suffering! Sorry! I wish you the best, and that they can find the cause of your suffering! Take care! And God Bless!

    Cyber!

  • blondie
    blondie

    I understand chronic pain; but they know what causes mine, just no cure and I have to rotate my meds.

    Have you tried Lunesta for sleep problems? Only the 30th med I tried and it is helping.

    I suppose walking on your hands is not an option (smile)

    Blondie

  • jgnat
    jgnat

    Could it be something like, the brain's been silently screaming for too many years, "There's something wrong." with no answer, that it finally picked the feet to send the message to?

    At least now it's not being ignored?

  • Nosferatu
    Nosferatu

    Hope your new beds bring you better days! Chronic pain sucks.

  • catbert
    catbert

    Try researching "neuropathy". It sounds a bit like that.

  • Lady Lee
    Lady Lee

    jg

    Could it be something like, the brain's been silently screaming for too many years, "There's something wrong." with no answer, that it finally picked the feet to send the message to?

    I have a feeling this might be the case. I've had foot problems my entire life. Shopping for shoes is always a nightmare and I wore special boots until I went to Kindergarten at 4 yrs old.

    Blondie & CW

    Have you tried Lunesta for sleep problems? Only the 30th med I tried and it is helping.

    The new med is Celexa. And it is definitely helping me sleep. We'll try it for a while. For now I am on the lowest does. The Dr. says I can go up if needed so that is good to know. I suspect I might wind up cycling through meds as my body gets too used to something. I do take glucosamine and chondroitin for the artritis but it does nothing for the pain in my feet.

    cyberguy and Nos

    Thanks

    catbert

    I've researched neuropathy to death. That is definitely what it is and it is extremely difficult to discover what is causing it. And without a diagnosis treatment is limited to treating the symptoms.

    At one point they had me on anti-inflammatories - until they discovered the anti-inflammatories were having an opposite effect and making the swelling worse.

  • Sad emo
    Sad emo

    (((Lady Lee)))

    I was just thinking exactly the same as catbert as your symptoms sound exactly like those of someone I know who took years to get diagnosed. It turned out he has a very rare neuropathy - I think only about 8 cases in the UK! I can't remember what it's called but I know he's built his own website to support other sufferers. He uses SKENAR (sp?) to treat his symptoms - it's like a more advanced type of TENS - more expensive but he says worth the investment.

    Do your symptoms get much worse before thunderstorms or when the weather takes a sudden change?

  • Big Tex
    Big Tex

    Dang LL! You've been battling this for some time. I love it when doctors can't find the answer, so they blame you; like you'd make all this up or something. BTW, nerve conduction tests? ouch, those are seriously painful.

    If you ask me, you've got either a rare condition, or they've been approaching it the wrong way. Unfortunately I know nothing about feet, so all I can offer is a hug.

    ((Lee))

  • Lady Lee
    Lady Lee

    sad emo

    It turned out he has a very rare neuropathy - I think only about 8 cases in the UK! I can't remember what it's called but I know he's built his own website to support other sufferers. He uses SKENAR (sp?) to treat his symptoms - it's like a more advanced type of TENS - more expensive but he says worth the investment.

    If you can find that info I'd be happy to check it out

    Do your symptoms get much worse before thunderstorms or when the weather takes a sudden change?

    My arthritis gets worse but not the foot pain. They did find some arthritis on my heels but that isn't where the foot pain is.

    BT

    Dang LL! You've been battling this for some time. I love it when doctors can't find the answer, so they blame you; like you'd make all this up or something. BTW, nerve conduction tests? ouch, those are seriously painful.
    going on 4 years now. My Dr is really good and she knows how to talk to me without making me feel stupid. She knows I do a lot of research on my own and is really great at listening to me. Yesterday we were talking about brain chemistry and knows I took Bio101 in university. I've even surprised her a few times at what I can remember The nerve conduction tests were less painful than getting a needle. They attach electrodes at very places on my leg from the knee down and foot and then stimulate the nerves. It causes a very mild shock and the shock moves the muscle. I've had worse shocks plugging in a toaster
    If you ask me, you've got either a rare condition, or they've been approaching it the wrong way. Unfortunately I know nothing about feet, so all I can offer is a hug.

    Well could be a rare condition. I think what has been done so far is to rule out all the usual conditions that might cause this. We've been able to rule out neuromas, diabetes, B12 deficiencies, structural problems with the bones, nerve damage, rheumatoid Artritis and the other artritis, broken bones, gout, blood problems, plantar's faciitis, the list goes on and on. In cases like this it is often a matter of ruling out the usual suspects. I think we have come to the end of the search and I am resigning myself that we may never know what it is. I'll just be happy if it doesn't get worse.

    ((Lee))
    From you - always most welcome

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