I agree with everyone above. I feel so bad for poor little Makenna . She seems so sweet, and yet she has this terrible affliction to deal with (being born into and indoctrinated by a mind-control cult). She also has devastating medical problems.
It does seem her parents are getting her the vey best medical care available, and that's a good thing. I am sure they cannot see the contradiction between praising the work of highly educated people at advanced research facilities and their own precious organization's continuous rant against acquiring such knowledge and contributing to that research. It seems they are "using the world to the full," and I am glad they are in this case, but still...
Less important, but still significant, is the fact that the parents quite willingly accepted the Make A Wish Foundation's generosity but barely mentioned any sort of thanks or gratitude to those who made it possible. This broadcast would have been a perfect opportunity to do so. At least they allowed the little girl to wear a Make A Wish t-shirt. Of course, they then dampened that little bit of acknowledgment and gratitude by pinning a big ol' "JW dot org" button on top. It's also highly unlikely they ever donated to Make A Wish or anything similar, because their masters (the Slave™ is such a misnomer!) strongly discourage doing so. Can't be helping any worldlies, you know.
With that attitude, I think the JWs should conscientiously decline any such gift from a "worldly" organization and make their own arrangements if a desperately ill child wants to visit Bethel. The Society could easily afford to do so in extreme cases like this. Might even give a "good witness," because you know they'd publicize it to the hilt. But I doubt that'll ever happen. They seem to be accumulating wealth simply for the sake of accumulating wealth.
I don't know if blood will be an issue in this case (and it might, given the prospect of brain surgery), but the same principle applies. Most JWs are quite willing, maybe even appreciative, to use whatever blood fractions are on the "approved" list, but adamantly refuse to donate blood. I would bet the majority don't know, and none of them care, that it takes thousands of blood donations to provide the fractions that even one JW patient might use. To me, this is selfish and hypocritical. You might even say greedy. I fervently hope Makenna doesn't wind up needing blood. But if she does, and her parents deny her that, I hope that gets publicized just as much as did their visit to the JW Mecca on someone else's dime.
I also thought the parents' shameless promotion of "JW dot org" was in poor taste. It was not enough to mention it several times and refer to it as "Jehovah's house." They had to pin a big button on Makenna's t-shirt and a pin on the dad's top as well.
All that said, the parents do seem to be genuinely loving and concerned for Makenna's welfare. And she is the precious innocent in all of this. Little does she know they would sacrifice her on the altar of the Watchtower if it came to that. They would be very sad, and they would wish it otherwise, but in the end, they would do it. Such is the tragedy of living under the delusion of "serving God" when one is actually under the thumb of a self-serving mind-control cult.
Regardless, I do wish Makenna and her family all the best. I know how devastating her illness must be on all her loved ones, and my heart goes out to them. What kind of a "loving God" would permit such needless tragedy?
To quote one wiser than I:
“With or without religion, you would have good people doing good things and evil people doing evil things. But for good people to do evil things, that takes religion.”
― Steven Weinberg