I am on permanent disablity. I use an electric scooter, I have fore arm crutches but unalbe to use. I wheel around my aparment on office chair. I have chronic fatigue. Anemia as well. And severe headaches day and night since 2006 a result of four whiplashes that year. I am seeing a surgeon for my spine neck and skull.
I am getting a bariatric hospital bed, a bidet and commode and new lift chair and oxygen, and new mask for my CPAP machine for my sleep apnea, I suffer shortness of breath and I have COPD, I need to be on oxgyen. I also have severe asthma that puts me in the hospital about twice a year. I have arthritis in my skull neck spine legs and feet. I have Reumatoid Arthritis, osteoarthritis, Spinal stenosis in low back and in neck. I have poly arthristis, arthrosis, hyperarthosis in my brain, I also have an hip replacement and may have to have the hip and knees done soon. I also suffer from severe depression several times a year. Still I am trying to deal with Marco's passing as well. I try not to think of it all the time I keep myself as upbeat as possible.
I have fibromyalgia, Last Tuesday I was in the hospital because my spine went into somekind of flare up and had to have morphine drips twice before being discharged. The shortness of breath is really bad and I see the specialist in June 27, This was my second flare up that required hospitalization The Arthiristis' also put me in the hospital at least two or three times a year.
I amnow living in Alternative or Assisted Living. My apartment is gorgeous and is equipped with medical stuff and have ceiling hoists in the bedroom and bathroom. No bathroom tub just shower stall which is quite large. A huge kitchen large living room and a very spacious bedroom and also a huge storge room in the apt, itself. It is beautiful.
The nursing staff are fantastic, they do my personal care, laundry and housekeeping and I have three meals a week in the dinning room. They visit me twice or three times a day and remind me of my medication times.
The staff treats me grand. I have been blessed in so many ways lately that I know God is helping me. Despite the fact I have all these health issues I can say with conviction that I try hard not to think so much about it. I keep busy in church activities. I enjoy my new scooter very much although It has been since 10days I haven't been able to go out on account of the severe pain in my hip and spine. My friends at church are wonderful and helpful. I do what I can to help out at church , I do reading, and help out with office things and am going to start making prayer beads and infant bead for newly baptized infants. It s fun and I also help another girl with the developmentaly handicapped person . We play games and or do arts and crafts which are sold annually for the Christmas bazaar.
One friend she does shopping for me every other week and refuses payment, she says it is her gift to me. I recieved two new pairs of dress pants from another friend at church.
I pray alot read alot and do my very hardest to think young and do things if it is within my power to do so.
I have been disabled since 1983 for a few years and in 1988 started to recieve full pension benefits.
I can say that without all my dear friends here in JWD and my friends from church and my best friend from the organizaiton (she walked away in 92) and I left in 99 and we picked up as if we were never seperated. We share so many wonderful things together . She has me up for a few days so I can use her hot tub and she has spend a lot of time here helping me put my new apartment in order. She did all the packing now she is doing the unpacking. She is truly a kindred spirit and I adore her very much.
So being disabled is something I know I have to live with but I try really hard to not let it devour my spirit for living.
and to all other who suffer from illness and are on disability I pray God watch over you and keep you in his love and that also applies to everyone else in JWD land.
all my love
Orangefatcat.
