I just had so much fun!!!

by Lady Lee 17 Replies latest jw friends

  • Lady Lee
    Lady Lee

    Maybe that kid will be in the NHL one day

    That was one of my thoughts. My grandchildren are 6 and 5 and this little guy was a lot smaller then then so I might be very generous in saying he was 4. I could easily see him with a hockey stick in his hands, shoulder turned waiting for someone to pass the puck.

    Decieved

    Life is most definitely not over just because we are disabled. I had to stop using the manual chair due to arthtitis in my hands. I now have a power chair which is why I can go so fast. It has a lot more stability than a scooter due to its solid base and 6 tires. It takes a lot less energy to steer it than it does to steer a scooter. I've had both and would never go back to a scooter although they do have their uses. I used mine mostly for sightseeing. The wheelchair goes everywhere. Our city buses are almost all accessible plus when the snow is bad I can take parTransit but I rarely use the service. In the winter I stay off the sidewalks. It is just too easy to hit a patch of ice and wind up off the curb. So I am most wheelchair users are on the streets. I take side streets where the likelyhood of getting hit is greatly reduced.

    Decieved if you haven't got one yet definitely look into getting a special cape for people using mobility devices. They are waist length in the back so you aren't sitting on it and go down to your ankles in the front. They are wide enough to tuck under your legs. You wear them over your coat in the winter and believe me it keeps you very warm. I found my first one in a used items store by accident. Since then I make my own. But if you don't have one and want that first one I will send it to you. FREE. see http://www.escapesclothing.com/capes.htm for what I am talking about. The one I have is a orangy-brown color with a hood and fleece lining. It is ok for light snow but not wet snow or rain which you probably whouldn't want to be out in anyways.

    Don't give up on life. I live alone and do everything for myself. Mind you I don't have MS and know that you never know what the next day will bring when you wake up in the morning. I walk when I am in the house. I only use the chair to go out. I would feel so trapped without it. It really does give me my freedom. If you haven't seen this thread you might want to check it out: Got a question about disabilities? I have answers

    MS is a challenge but find something that makes you feel good and do it - every day if you can. I have chronic pain so doing something I love or that interests me keeps my spirits up. Every year I find a new something to learn. Find things you can do and try hard to to think too much about the things you can't do. Craxy thing with MS though is that while you might not be able to do something today maybe tomorrow you will. I hear remissions are great.

    BTW If you are in the North Bay Sudbury area I might know some people you know.

  • OUTLAW
    OUTLAW

    Good Morning LadyLee!..

    Thats an awesome story..

    I see you put smiles on some faces here..

    Good for you!

    ........................ ...OUTLAW

  • Deceived
    Deceived

    Hi Lady Lee

    I couldn't find this thread after I posted the first time. Now I see all I had to do was go to my profile and find my latest posts lol.

    Thank you for that advice. I sure could use some now. Things have really gone downhill for me quickly this past year. I was advised to get a power wheelchair but I wasn't near as bad then when so I opted for a scooter. That was 2 years ago. I have to wait another 3 years for the govt and MS society to help me get a power chair.........so I must deal with what I have. The Cape sounds interesting. I must get me something soon.

    I don't live near Sudbury I am about an hour north west of Peterborough and 25 minutes North of Lindsay Ontario and #7 highway. It is a little little tourist town and its not very easy to find help here. I need to move to a bigger town soon. I moved here 5 years ago from Toronto. I was healthy then or I wouldn't have moved to a place where I didn't know a soul.

    It seems I could learn a lot from you ;-)

    Thanks again Lady Lee

    Hugs from Deceived (My name is Paula)

  • White Dove
    White Dove

    I would love to go skating with you, LL!

    I think you and Velvet outa be roomies.

  • Lady Lee
    Lady Lee

    Hi Paula

    Well you now have some online support. I left some info for you on the other thread lol

    Gosh I was checking my map. You really are in the middle of nowhere when it comes to support. I think being closer to family who can offer some support and definitely being in a city where there is lots of support is going to be essential to your life as a person with a disability.

    I want you to remember something and think about it. You are more than your disability. You are a person first. Even though the disability colors how you live it isn't who you are. You need and deserve all the help and support you can get.

  • Deceived
    Deceived

    I sent you a PM Lady Lee!!!

    I really appreciate you and others listening to me. I just have been so embarrassed about this and so I have just not asked for help. Now I have to or I am going to just go crazy.

  • White Dove
    White Dove

    I get what you're saying, LL. I think sometimes that people view me as an enigma: Deafy, speaks English and some Spanish and sings to herself.

    I think that maybe I surprise people with how not "deaf" I am as far as stereotypes are concerned.

    People seem a little guarded and a bit surprised when they see me behaving and doing things like them.

    I show that I even think like they do and like similar things.

    For a long time, I believed that my hearing status defined me, being late deafened as an adult.

    Could it be that I'm breaking through a stereotype barrier?

  • Lady Lee
    Lady Lee

    I like to think we each play a part in breaking the streotypes instead of becoming one. When I got my bike last spring people were stunned that I could ride a bike but use a wheelcahir. Some still don't understand the problem I have walking. They see the man 2 doors down from me who must be in a wheelchair and then they see me, sometimes with just a cane if I am getting into a car at the front door or using a walker if UI have to take the bus to Montreal, then the bike to go for a ride and on top of all that I use a wheelcahir to get around town.

    To many people if you are blind that means you see nothing. But in reality there are many legally blind people who use guide dogs or canes but they still have some sight.

    To many people deaf means you can't hear at all. They don't classify hard of hearing as a form of deafness

    Same thing with mobility problems although there are many people in my apartment building who do use canes or walkers and many more who should be using them but they are too embarrassed to admit they need the assitance. There is one old man who walks using 2 sticks he made - sticks! He won't use a proper cane because that would mean he is disabled!!! What he needs is a wheelchair not even a walker.

    Pride is one of the stupidest things I have ever seen when it comes to people getting their heads out of the sand and admitting they have a disabilyt. It isn't shameful. it is a fact of life for many people as we age.

    I sometimes wonder how much of our health problems now are a result of life long stress as a JW and the wear and tear on our bodies walkign from house to house with our stupid book bags that were always tightly packed and weighed a ton

Share this

Google+
Pinterest
Reddit