Likeabird: I think you raised an important issue.
I do agree that children should not be treated like property and be at the sole whim of their parents.
I feel most parents want the best possible care and outcome for their children.
I agree with Bluesbrother: medical advise and expertise varies. Even experts can disagree about treatments. I think medical personnel should be willing to work with the parents and help them understand their options.
I had an experience with having to butt heads with my child's doctor and being a strong advocate for my son. I had to do my own research. I too went on the internet so I could get more information.
I searched for experts and was able to make an appointment. I had to drive over 3 hours from home for the consultation. Even after I got the information and the experts sent their recommendations to my son' s doctor, I still had to fight with her.
The issue was how low my sons platelet count needed to be before he was hospitalised. His doctor had an arbitrary number without taking anything else into account. The experts gave me a range and other factors to take into consideration.
The point was my son's doctor felt he was at risk even though Doctors with more experience disagreed.
I had an ER doctor who thought I was risking my son' s life because I didnt immediately put my son in the hospital when his platelets went down. He looked at the numbers and not at the whole picture. I had backing from doctors who had experience in this field.
So I am saying that sometimes a parent is forced to be an "expert" and be assertive because some doctors already have their mind made up.
In my case I was not opposed to getting my son treatment. I disagreed with the implementation and degree of the treatment. In my son's doctor's mind my son was at risk.
We changed doctors. I could not take fighting with her every times.