Calgary girl ... struggle for life (help!)

by Simon 22 Replies latest jw friends

  • BeautifulGarbage
    BeautifulGarbage

    why are we debating this child's situation


    First off, untrusting, Welcome!

    Second, many of us have been following Mia and her Fathers legal struggles against the WTS to get blood transfusions needed for her to even have a chance a survival. He is now in a desperate situation, financially, because of the enormous costs associated with fighting the deep pockets of the WTS.

    When Running Man wrote that "It was obviously an attempt by the WBTS to imply that the transfusions were causing her illness, and if they had been stopped sooner, she would be OK. Damn ghouls." , I remembered the thread I read yesterday on a JW board regarding Mia and her blood transfusions. It's obvious that many loyal Dubs are touting the JW party line regarding blood. They do this purely out of ignorance and fear.

    I am certainly no expert in US law, let alone Canadian law. Here in the US, like it or not, judges DO make law. I'm sure someone will correct me if I am mistaken, but it is probably very similar in Canada. A decision made by a judge regarding such matters like this can have ramifications for years to come. I think about future children, especially JW children, who might be diagnosed with Leukemia. What happens with Mia can directly affect them.

    Sorry, I don't know that much about Lukemia; does it attack the red or white blood cells? Can't she get a bone marrow transplant? Would this help her body to produce the necessary blood? And what about those machines that they put your blood throught to purify it (is that dialasis?)......has this been tried?

    Leukemia is basically Cancer of the White blood cells. Those cells are directly responsible in fighting infection and illness. There are several different types of white blood cells and their is a type of Leukemia for each one of them. Leukemia doesn't attack anything. For reasons the scientists do not understand, the bonemarrow goes haywire by releasing immature white blood cells into the bloodsteam. Because they haven't fully matured, they are unable to perform their function of fighting infection. So these immature cells called Myeloblasts, start multiplying very rapidly. They crowd the blood and make it very difficult for any other type of cell (red blood cells, platets, healthy white blood cells) to multiply and perform their functions, such as carrying oxygen through out the body and the bloods ability to clot. Symptoms are usually bruising, fatigue, and achiness. AML generally affects older teenagers and young adults.

    As for Bone Marrow Transplants. Yes, it is an option. However, there has to be a "match" found first. That in itself is a very high mountain to climb. Then, ironically, the receiver has to be "healthy," or strong enough to receive one. BMTs are extremely risky. Literally, every cell in the receivers blood has to be destroyed. The risk of infection is so great that someone in Mia's condition would never survive. And even if one is performed, then there is the risk of the receiver's body rejecting the marrow. Just like in an organ transplant, there is a chance that "Host vs Graft Disease" may develop. This generally proves to be fatal. And again, there is the whole issue with the JW blood doctrine with Mia.

    As far as a dialysis type treatment. I have heard some things about that. Maybe in the future that will be an option. See, the trick with Leukemia is that the problem is in the bone marrow, itself. So, that is what needs to work properly. If there was a way found that while the "bad stuff" was being filtered out, the good stuff would be allowed to remain, this type of procedure might be promising. Filtering out everything would be very much like preparing someone for a BMT. And I described the risks associated with that. Being exposed to something like The Flu unintentionally could be fatal. The area that something of this nature being performed would have to be highly controlled. The rooms that BMTs are done are completely sterile, and only certain people are allowed in. The fewer the better. It is very different than a kidney patient receiving dialysis.

    Anyway, I hope that helps. This whole thing has affected me very deeply.

    Andee

    Edited by - BeautifulGarbage on 16 July 2002 23:43:49

  • Mary
    Mary

    Thanks Andee for explaining the Leukemia to me...........what a horrifying disease. While I think every Witness should be able to choose for themselves whether or not they want a blood transfusion, I have serious doubts as to the effectiveness of blood transfusions in cases like this, although I could be wrong. As you said, it's the bone marrow itself that is faulty and needs fixing.........did they even TRY to find a match for her when they first found out she had leukemia?? That would make the most sense to me.

  • untrusting
    untrusting

    Sorry BEAUTIFULgarbage, i read the first post on here but it didnt state that it was a battle between the parents to give this child a chance or not. Im new on here and didnt realise there was a history i thought it was just this poor dad who desperatly needed help finding more chances for his daughter. It seemed everyone was debating a simple plea for help. Im sorry i got that wrong and hope it didnt affend any one. How old is this child? If she is of a resonable age say 12 plus does she have a choise in her treatment? If she is under this age surely there is an obligation to help her live and some kind of funding can the governing body not give funds for alternative treatment if they belive so strongly the blood is not helping...Or is that too much to ask.

    untrusting

  • BeautifulGarbage
    BeautifulGarbage

    For what it's worth, this post will bring this thread back to the top.

    Hi Mary and Untrusting,

    I just wanted to state that blood is not used to "treat" Leukemia. Chemotherapy and radiation is what is used to, hopefully, destroy all malignant white blood cells. Unfortunately, the drugs that are most effective today destroy not only diseased cells, but also healthy cells. The same is true with radiation.

    This is one of the reasons that the Dad wants to try the treatment in California. The claim has been made that it will destroy all the bad cells and leave the good. Unfortunately, these treatments have never proven effective. But, his baby's life is on the line. I would be doing no different in his shoes.

    When blood fractions (whole blood is rarely transfused with Leukemia patients) are needed is when a patients blood "counts"(healthy cells) are dangerously low and the risk of infection is great. They need the infusion of healthy blood cells, whether they be RBC's or platelets, etc., to keep the patient alive while treatment is ongoing. AML (Acute Myelogenous Leukemia), the type of illness that Mia has, is extremely virulent. The patient needs to start treatment immediately. There is no time to ponder options, unfortunately. An induction must be started ASAP. I don't think that Mia was ever strong enough to be able to seriously consider BMT. However, this is purely conjecture on my part. I surmise this from the information that has been provided. Plus, my own experience going through this with my own child, talking to Pediatric Oncologists/Hemotologists, and being in contact with other parents that have had children with the same illness.

    HawKaw is the one who knows the most about this particular case. What I know is what I have read here. Unfortunately, this has destroyed a family. Mia's Mom, a loyal JW is staunchly against transfusions. Mia's Dad, also a JW, but wanted his daughter to have a chance a survival, has been the one fighting for the transfusions. Mia is 17, a loyal JW, and has refused the transfusions. So far, the courts have overidden her refusal. One of the battles has been whether or not she is a mature minor and has the "right" to refuse the transfusions. The problem is where she got all of her information regarding blood. Of course, everything she knows came directly from the WTS and IMHO cannot give informed consent.

    At this point, she is in very grave health. Yes, I'm sure the stress has not helped her during this time. But, without the treatment she HAS gotten, she would have never survived this long.

    As far as the governement paying for it. I think someone posted that the Canadian government will not pay for a treatment that is not "proven".

    If you want to understand better, there are many threads on this subject. Just type "Calgary" into the search option of this board.

    Andee

  • Kismet
    Kismet

    Under the blood & medical treatment forum, I posted two threads regarding mature minors.

    http://www.jehovahs-witness.com/forum/thread.asp?id=31854&site=3

    http://www.jehovahs-witness.com/forum/thread.asp?id=31839&site=3

    These two threads essentially explain why JW teens should not qualify as mature minors whereas other non-jw teens quite often are declared as such.

    It essentially boils down to their ability to make a personal decision that is not made under duress or based on undue influence from other sources such as family or clergymen hovering over the hospital bed.

    If the Court can determine that a minor (whatever age that may be in that jurisdiction) is not capable or in a position to make an un-influenced decision, especially in medical emergencies, the Court can apprehend said child and force treatment upon them. This was what the courts in this particular case determined, and the Supreme Court of Canada refused to intervene.

    Unfortunately the Society has now thrown their poster child, Mia out of their minds and she and her family are left to pick up the pieces. As I have mentioned before the blood is on the hands of David Gnam, Shane Brady and the Branch Committee.

    Kismet

  • dungbeetle
    dungbeetle

    I wish I could go back onthose JW-only <gag choke> boards and say...

    Bless Jehovah!! 'Mia' is victorious!!! Treatment may now proceed, by permission of the court, without blood. However, the non-blood treatment likely will not be paid for by the government, and the family is penniless, so, my dear brothers and sisters, donations are needed for this dear sister of ours to obtain life-saving treatment in California. The address is......

    Will it happen? Can it happen? We shall see...

  • outnfree
    outnfree

    Andee,

    Is it not true that were a Bone Marrow Transplant ever an option in Mia's case, it would be a sibling who would be the most likely compatible donor? Unfortunately, her JW sister would likely never have consented to be a part of such treatment.

    Lawrence,

    My cousin has a doctor in the Ft. Worth, TX area who has been treating her Non-Hodgkins Lymphoma with an experimental drug which he helped to develop. This is NOT a natural/homeopathic type of treatment, it is not even FDA approved for general use, but if you are interested in contacting the center, e-mail me at [email protected] (not my hotmail account) and I will give you the phone number.

    Hugs to you ((((((((((((Lawrence)))))))))))))) I am saddened by this news.

    Brenda

  • BeautifulGarbage
    BeautifulGarbage

    Hi Out!

    Yes, a sibling would be the first choice to locate a bone marrow match. However, there is only a 30 to 35 percent chance that siblings marrow will match "enough" for it to be harvested. Of course, an identical twin is the best potential donor. Plus, you are right, most likely, Mia's JW sibling would refuse to cooperate.

    This is just one very tragic situation.

    Andee

  • myname
    myname

    Hi

    I joined this forum just because of this thread. I have to defend MIA.

    I will not disclose where I got this information from, all I will say is that I had the privlege of meeting MIA in a forum, and this is one her posts. Her father seems to exaggerate. I understand his pain, but anyway, here is one of MIA's latest posts. This is the only one I will ever post here.

    Note her response to the article...

    If you want a new update this article waas in today's Calgary Sun. They really don't like me there...LOL. Where my dad comes up with his lies I do not know...at least he should get points for his creativity occasionally.


    Calgarysun.com > News > Today's News

    Monday, August 19, 2002
    Sick girl's birthday off-limits
    By MICHAEL WOOD, CALGARY SUN

    The father of a teenage girl once involved in a court fight over her right to refuse blood transfusions on religious grounds will not be able to visit her on her 17th birthday tomorrow.

    He does not know where she is being treated, what her treatments are, nor has he been given a phone number to reach her to simply say hello.

    And while lawyers battle out a custody lawsuit in court, the Calgary dad is beginning to fear he may never see her again.

    "It makes me feel upset that I can't contact my dying daughter," said the man, who, like his daughter, cannot be named under provisions of the Child Welfare Act.

    It's been nearly two weeks since the father has spoken with his daughter from her secret location at a cancer clinic in Alberta.

    IN UNDISCLOSED SPOT

    Lawyers for the girl, whose father claims is under the influence of the Jehovah's Witnesses along with her mother, will only say she's in an undisclosed clinic getting chemotherapy but no blood transfusions to treat her leukemia, which is believed to be fatal.

    "I don't know if she's being taken care of properly, I don't know what kind of treatments she's getting, I don't know if she's in pain. I don't know if I'll ever see her again, alive," the father said.

    "It's very upsetting to know my daughter is critically ill and could die, and it makes it even more important that I know where she is."

    The girl was diagnosed in February with acute myeloid leukemia.

    Lawyers for the girl couldn't be reached for comment.

    Next story: Tape focus in fire probe

    There's the media's take on it. Here's mine:
    1. I talked to my dad this morning;
    2. We told him a week ago where I am and at what clinic (he signed a nondisclosure agreement);
    3. Hello? I don't celebrate my birthday;
    4. He likes to lie a lot and make things up. Grr!!!

    Anyway, I did an interview for the Calgary Herald for tomorrow so hopefully it'll turn out all right-the guy's really nice, AND I got to give him a witness.

     
  • SYN
    SYN

    The level of indoctrination evident in the previous post is stunning. My God. Hopefully this girl will make it through, but the prospects are looking dim

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