I can't stress this often enough or too strongly: Have all reference to the JWs DELETED from your computerized hospital profile. Considering the recent requirement that the HLCs seem to be making of hospitals that they notify the HLC even if the patient has no AMD or DPA-HC form, and staff "have reason to believe that a patient is a JW".
The other thing you absolutely MUST do, is COMMUNICATE with the hospital staff and plan a strategy with them if you intend to take a blood transfusion, and they realize you are a JW, and you want their help to do it without interference from the HLC.
Yes, it CAN take between 2 and 4 hours to transfuse a single unit of blood. Doctors generally will order a minimum of 2 units - so expect 4 to 8 hours when you will have to keep everyone EXCEPT hospital staff out of the room. Nurses are happy to cooperate with patients if they understand the implications of someone you know walking into a room and seeing a unit of blood infusing into your arm. I put "Do Not Disturb - Please see the Nurse" signs on patients' doors all the time for whatever reason the patient wants one. I would also be willing to ask a doctor to order that a patient be placed on "Isolation Precautions" or quarantine if I believe it necessary to abide by the patient's wishes. If I knew that keeping the blood transfusion totally confidential was imperative, there are also measures that staff can take to ensure that the unit of blood, the tubing and so on is brought into and removed from the room unobtrusively - covered by a blanket, for example.
You do have control over the situation. It's up to you to retain that control as much as possible. The doctors and nurses are there to help you receive the medical care that you want and need. We will do everything in our power to make sure your privacy is protected, but you have to COMMUNICATE with us!!
Love, Scully RN
Edited by - Scully on 17 January 2003 1:5:17