Chronic fatigue syndrome/fibromyalgia...

by Quentin 18 Replies latest watchtower medical

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  SWALKER

  I was diagnosed with Fibromyalgia, Chronic Fatigue, and NMH in 1990. I had been suffering from exhaustion for several years prior and finally got a name put on the problem. Then I tried to find a cure. I have tried almost everything you could think of...some crazy stuff, like going on a water fast for a week! (That was supposed to cleanse my system, didn't work!) Now I am going to look into the Marshall Protocol, which you can google and find very easily. I found a dr. that is willing to work with me on this and see if this could help! If it does, it will take time, but you can be sure that I will let everyone I can know about it. Also, there was a special on 20/20 ? several years ago and they suggested to find out if it could be caused by spinal stenosis...I had that checked out and found that I had 2 discs in my neck that were damaged and cutting half-way into my spinal cord. How much damage this did it anyone's guess. I had surgery and that really helped my neck pain. The fatigue is so overwhelming at times and that is the biggest problem to deal with on a day to day basis. I hope your daughter can find some relief but let her know there are more and more people out there who can sympathize with her problem!

  Swalker
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  Quentin

  Now I am going to look into the Marshall Protocol...SWALKER

  Thanks, will look it up...

  Hope she does Brenda. She has two kids at home and a drunk for a husband, who by the way wants a diviorce. Gee, ain't life grand...
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  Nellie

  Hi. Sorry to hear about your daughter. I was actually diagnosed with fibromyalgia in 1989. Simply put, fibro is chronic fatigue syndrome PLUS pain. The diagnosis is usually made when 11 or more of 18 points on the body are painful when touched. These points are usually called "target" points, because although they are painful, the pain usually comes from other places, known as trigger points. Personally, I have one large target point, behind my right shoulder blade which always hurts, but occassionally flares up from time to time. I usually describe the pain as what I imagine a lighted match would feel like if suddenly placed on my shoulder. The doctors have described it as acid buildup in the muscle. Hence, the fire pain.

  As a family member I would like to caution you to look out for depression. Unfortunately, it is a very common part of the syndrome - with good reason. You're tired, you can't sleep (sometimes you have insomnia) and even when you do sleep, you wake up more tired than when you went to bed. You hurt - everywhere - and yet you LOOK fine. In fact to the untrained eye, you just look lazy! Encourage her to do what she can and to accept what she can't. With supplements and diet changes, she can improve her symptoms, but they won't ever really go away. It's like someone with arthritis - you have good days and bad days. Tell her to make the best of the good days, get to bed regularly (it really does help not to stay up too late) and try massage and relaxation methods. It does help.

  My best to her ... I need to take my own advice now and go to bed!
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  Quentin

  Thanks Nellie...I'll pass your comments along...
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  joanne_

  hi quentin

  i myself, suffered from the fibromyalgia for many years. i had the muscle ache, headach, depression, sleeping problems, chronically tired, very stressed out. i got a very nice doctor who understood what i was going through. he gave me paxil for depression and panic attacks. amitriptyline and a mild sleeping pill for sleep. i must say, this did not start to really work for me until, alot of what was causing the stress in my life, was out of my life. bad marriage and trying to raise children on my own, while on welfare. i divorced my husband and the kids went to live with him. it was only then, that i could get the rest i needed and started working, i barely get a headach now (its been 3 years). but i still do tire easily, so i do require alot of rest. all i can say is, know your limits, and pray for positive change in your life's circumstances. eat well, and get some fresh air and exercise.

  hope this helps

  joanne
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  upside/down

  Sadly...u/d's unofficial "study" of high-control, high-anxiety groups is that....

  Being a JW SIGNIFICANTLY increases the odds of coming down with these maladies.

  u/d(of the Awake Univ. Phd class)
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  lisavegas420

  just so happens that I am taking classes on reflexology and just learned, that many people with fibromyalgia benefit from combining reflexology with their treatment, perhaps because all organs and systems are said to be gently toned from working with the feet.

  lisa
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  Quentin

  lisa...interesting...makes since to me...thanks
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  SWALKER

  I got my blood test for the MP yesterday, but will have to wait possibly a week or so for the results. For anyone that is interested I am posting the following information to read. Click on and go down to the 7th post:

  http://www.marshallprotocol.com/forum37/3391.html

  Swalker