azor

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Posts by azor

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  38

  We're Ashya Kings parents right?

  by The Rebel in

  1. jw
  2. friends

  do you remember the case?

  jehovers witness parents did a runner without telling the medical staff caring for their seriously ill child and took him to receive proton therapy in praque as this treatment was not available in the u.k.. first most importantly the good news, the boy was declared cancer free last march.. anyway i am sure at the time this issue would have created a lot of heated debate on the forum, as it was a case that created a media frenzy, with the parents and their jehovers witness religious beliefs being heavily critizised .

  however as i followed the case i couldn't help but admire the parents, as i felt they would have acted indepentedly of both the jehovers witness organisation and the u.k medical advice, having in my opinion seriously thought the matter through, and then doing they thought was the best way for treatment.. so if you remember the case my questions are:-.

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  azor

  When my son was diagnosed I was a mess in many ways. I was a died in the wool believer. My JW upbringing developed in me a deep suspicion and distrust of the medical field.

  A few weeks prior to my son's diagnosis we saw the "Gerson Miracle" on Netflix. My wife's first call was to their clinic in Mexico. You see they are banned in the U.S. because of their quackery. At the time we believed the conspiracies about the medical field. My wife's ability to cure herself of endometriosis using natural methods when her doctor claimed having children was hopeless didn't help our view.

  Had the Gerson clinic told her they would accept him I would have taken him out of the country in a heart beat, and likely lost him and my daughter. Thank goodness they don't accept children into their clinic. I know I would have taken him because I threatened to do so.
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  38

  We're Ashya Kings parents right?

  by The Rebel in

  1. jw
  2. friends

  do you remember the case?

  jehovers witness parents did a runner without telling the medical staff caring for their seriously ill child and took him to receive proton therapy in praque as this treatment was not available in the u.k.. first most importantly the good news, the boy was declared cancer free last march.. anyway i am sure at the time this issue would have created a lot of heated debate on the forum, as it was a case that created a media frenzy, with the parents and their jehovers witness religious beliefs being heavily critizised .

  however as i followed the case i couldn't help but admire the parents, as i felt they would have acted indepentedly of both the jehovers witness organisation and the u.k medical advice, having in my opinion seriously thought the matter through, and then doing they thought was the best way for treatment.. so if you remember the case my questions are:-.

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  azor

  Chemotherapy knocks down blood counts. Children undergoing a long term protocol with multiple years of treatment require blood transfusions on occasion. My son just needed one a couple of months ago and this is his third year of treatment. He is in the 90 percentile due to sticking to his protocol.

  Part of the Kings mistrust of the doctors likely come from their being jws.

  Cofty - my wife and I followed this closely when it broke and we bought it. We were waking up around this time. Had no idea of the other side. Can you point me to where I can find the NHS side.
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  26

  Seeking advice doctor & staff presentation

  by azor in

  1. watchtower
  2. medical

  my son is nearing completion of his 3-1/2 year chemo journey.

  i have an appointment with his primary oncologist at the end of next month as an end of treatment exit meeting.

  she and her team are leads at this particular hospital.

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  azor

  Thank you again JWdaughter.

  Smiddy - this is exactly what I'm looking for. I just didn't know where to start, and everyone is helping me with that. The abundance of information and sources here are excellent.
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  26

  Seeking advice doctor & staff presentation

  by azor in

  1. watchtower
  2. medical

  my son is nearing completion of his 3-1/2 year chemo journey.

  i have an appointment with his primary oncologist at the end of next month as an end of treatment exit meeting.

  she and her team are leads at this particular hospital.

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• 

  azor

  JWdaughter - great recommendation. I was going to ask my doctor who I should speak to on the subject. I was hoping I could make a brief 10 to 15 minute presentation during work training. Bringing snacks or lunch.
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  26

  Seeking advice doctor & staff presentation

  by azor in

  1. watchtower
  2. medical

  my son is nearing completion of his 3-1/2 year chemo journey.

  i have an appointment with his primary oncologist at the end of next month as an end of treatment exit meeting.

  she and her team are leads at this particular hospital.

  1. 
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• 

  azor

  Orphan crow & Neverknew - thank you. I will incorporate both.

  All for show - many doctors and nurses assume the average person knows that the treatments they or their loved ones undergo is confidential. Many jws automatically think the hlc is their for them and once there cannot be dismissed. It would be helpful if doctors and nurses told patients that they can give the transfusion at night and not have anyone else know about it. That is the parents right. Giving them another option.

  It is a whirlwind when in that situation. Your world is falling apart. I thought my son was going to die and angry at god and everything. I almost punched a hole through my tile bathroom wall. The last thing someone can face in that state of emergency is the thought of losing your entire support system.

  What you are stating about doctors not caring about these types of things has not been my experience with my son's children's hospital. I believe what you are expressing is where things were and have been. Just treat the disease and not the person. Fortunately that has changed over the years though progress is still needed.
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  26

  Seeking advice doctor & staff presentation

  by azor in

  1. watchtower
  2. medical

  my son is nearing completion of his 3-1/2 year chemo journey.

  i have an appointment with his primary oncologist at the end of next month as an end of treatment exit meeting.

  she and her team are leads at this particular hospital.

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• 

  azor

  All for show - I appreciate what you have to say and how you put it. How do you think they would respond bringing up that many parents do not know or really understand how confidentiality works.

  If not them maybe the nursing staff.
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  26

  Seeking advice doctor & staff presentation

  by azor in

  1. watchtower
  2. medical

  my son is nearing completion of his 3-1/2 year chemo journey.

  i have an appointment with his primary oncologist at the end of next month as an end of treatment exit meeting.

  she and her team are leads at this particular hospital.

  1. 
  2. 
  3. 
• 

  azor

  Cofty - Disneyland and a party. We are also waiting for his make a wish hoping for a Disney cruise.

  Orphan crow - any and all information is greatly apreciated.

  Find the lost - thank you. My son was actually born at St Jude. Had no idea at the time what they were known for. He was initially diagnosed at 5 years old.
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  26

  Seeking advice doctor & staff presentation

  by azor in

  1. watchtower
  2. medical

  my son is nearing completion of his 3-1/2 year chemo journey.

  i have an appointment with his primary oncologist at the end of next month as an end of treatment exit meeting.

  she and her team are leads at this particular hospital.

  1. 
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  3. 
• 

  azor

  Landy they already think that of me since I was an active jw with all its baggage when my son first went into the hospital. I have nowhere to go but up from here.

  I was also going to ask if there are any charities for doctors and nurses who work with children. From my observations it appears they suffer from me illnesses and die younger. I was thinking of starting a charity along these lines.
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  26

  Seeking advice doctor & staff presentation

  by azor in

  1. watchtower
  2. medical

  my son is nearing completion of his 3-1/2 year chemo journey.

  i have an appointment with his primary oncologist at the end of next month as an end of treatment exit meeting.

  she and her team are leads at this particular hospital.

  1. 
  2. 
  3. 
• 

  azor

  Thank you Kate. That is our hope to.
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  26

  Seeking advice doctor & staff presentation

  by azor in

  1. watchtower
  2. medical

  my son is nearing completion of his 3-1/2 year chemo journey.

  i have an appointment with his primary oncologist at the end of next month as an end of treatment exit meeting.

  she and her team are leads at this particular hospital.

  1. 
  2. 
  3. 
• 

  azor

  My son is nearing completion of his 3-1/2 year chemo journey. I have an appointment with his primary oncologist at the end of next month as an end of treatment exit meeting. She and her team are leads at this particular hospital.

  I plan on using this opportunity to show my gratitude for all they do as best I can. I was also going to put forward a presentation request regarding jws and blood.

  A little back story so you can understand how our unique viewpoint may help them. My wife and I were the typical intolerable jws when my son started his protocol. The hospital and their staff were unbelievable in their graciousness and their care. A little over halfway through this journey we began our exit and we are now all out of this cult.

  I was hoping to accomplish the following. 1st to help them understand even just to a small degree the mind control and potential loss of their entire support system. 2nd and more importantly what they should be helping people understand about confidentiality. This initial meeting will be brief, but my goal is to pitch my idea in a bullet point format perhaps with a rough power point presentation to hopefully move this to a full staff presentation. The hospital I'm speaking of is children's hospital of orange county. My goal is to start at this hospital and carry this message to other hospitals. Starting in Southern California and expanding from there.

  I know marc and cora did something similar and I would like to get in touch with them but don't know how.

  Any help and advice is greatly appreciated.