JWdaughter - great recommendation. I was going to ask my doctor who I should speak to on the subject. I was hoping I could make a brief 10 to 15 minute presentation during work training. Bringing snacks or lunch.
Posts by azor
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26Seeking advice doctor & staff presentation
by azor inmy son is nearing completion of his 3-1/2 year chemo journey.
i have an appointment with his primary oncologist at the end of next month as an end of treatment exit meeting.
she and her team are leads at this particular hospital.
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26
Seeking advice doctor & staff presentation
by azor inmy son is nearing completion of his 3-1/2 year chemo journey.
i have an appointment with his primary oncologist at the end of next month as an end of treatment exit meeting.
she and her team are leads at this particular hospital.
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azor
Orphan crow & Neverknew - thank you. I will incorporate both.
All for show - many doctors and nurses assume the average person knows that the treatments they or their loved ones undergo is confidential. Many jws automatically think the hlc is their for them and once there cannot be dismissed. It would be helpful if doctors and nurses told patients that they can give the transfusion at night and not have anyone else know about it. That is the parents right. Giving them another option.
It is a whirlwind when in that situation. Your world is falling apart. I thought my son was going to die and angry at god and everything. I almost punched a hole through my tile bathroom wall. The last thing someone can face in that state of emergency is the thought of losing your entire support system.
What you are stating about doctors not caring about these types of things has not been my experience with my son's children's hospital. I believe what you are expressing is where things were and have been. Just treat the disease and not the person. Fortunately that has changed over the years though progress is still needed.
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26
Seeking advice doctor & staff presentation
by azor inmy son is nearing completion of his 3-1/2 year chemo journey.
i have an appointment with his primary oncologist at the end of next month as an end of treatment exit meeting.
she and her team are leads at this particular hospital.
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azor
All for show - I appreciate what you have to say and how you put it. How do you think they would respond bringing up that many parents do not know or really understand how confidentiality works.
If not them maybe the nursing staff.
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26
Seeking advice doctor & staff presentation
by azor inmy son is nearing completion of his 3-1/2 year chemo journey.
i have an appointment with his primary oncologist at the end of next month as an end of treatment exit meeting.
she and her team are leads at this particular hospital.
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azor
Cofty - Disneyland and a party. We are also waiting for his make a wish hoping for a Disney cruise.
Orphan crow - any and all information is greatly apreciated.
Find the lost - thank you. My son was actually born at St Jude. Had no idea at the time what they were known for. He was initially diagnosed at 5 years old.
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26
Seeking advice doctor & staff presentation
by azor inmy son is nearing completion of his 3-1/2 year chemo journey.
i have an appointment with his primary oncologist at the end of next month as an end of treatment exit meeting.
she and her team are leads at this particular hospital.
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azor
Landy they already think that of me since I was an active jw with all its baggage when my son first went into the hospital. I have nowhere to go but up from here.
I was also going to ask if there are any charities for doctors and nurses who work with children. From my observations it appears they suffer from me illnesses and die younger. I was thinking of starting a charity along these lines.
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26
Seeking advice doctor & staff presentation
by azor inmy son is nearing completion of his 3-1/2 year chemo journey.
i have an appointment with his primary oncologist at the end of next month as an end of treatment exit meeting.
she and her team are leads at this particular hospital.
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azor
Thank you Kate. That is our hope to. -
26
Seeking advice doctor & staff presentation
by azor inmy son is nearing completion of his 3-1/2 year chemo journey.
i have an appointment with his primary oncologist at the end of next month as an end of treatment exit meeting.
she and her team are leads at this particular hospital.
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azor
My son is nearing completion of his 3-1/2 year chemo journey. I have an appointment with his primary oncologist at the end of next month as an end of treatment exit meeting. She and her team are leads at this particular hospital.
I plan on using this opportunity to show my gratitude for all they do as best I can. I was also going to put forward a presentation request regarding jws and blood.
A little back story so you can understand how our unique viewpoint may help them. My wife and I were the typical intolerable jws when my son started his protocol. The hospital and their staff were unbelievable in their graciousness and their care. A little over halfway through this journey we began our exit and we are now all out of this cult.
I was hoping to accomplish the following. 1st to help them understand even just to a small degree the mind control and potential loss of their entire support system. 2nd and more importantly what they should be helping people understand about confidentiality. This initial meeting will be brief, but my goal is to pitch my idea in a bullet point format perhaps with a rough power point presentation to hopefully move this to a full staff presentation. The hospital I'm speaking of is children's hospital of orange county. My goal is to start at this hospital and carry this message to other hospitals. Starting in Southern California and expanding from there.
I know marc and cora did something similar and I would like to get in touch with them but don't know how.
Any help and advice is greatly appreciated.
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Thoughts on letter to siblings
by azor ini will be sending a letter to all my siblings in the next couple of weeks, and wanted everyone's take on it.
the primary purpose of this letter is to pave the way for a limited relationship.
i want to invite them to my son's celebration for finishing his leukemia treatment.
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azor
The searcher thank you for your edit. This is what I'm looking for. Thoughts and critiques from the abundance of experience here.
I welcome all thoughts.
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Thoughts on letter to siblings
by azor ini will be sending a letter to all my siblings in the next couple of weeks, and wanted everyone's take on it.
the primary purpose of this letter is to pave the way for a limited relationship.
i want to invite them to my son's celebration for finishing his leukemia treatment.
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azor
Thank you dubstepped. Which letter are you referring to? -
6
Thoughts on letter to siblings
by azor ini will be sending a letter to all my siblings in the next couple of weeks, and wanted everyone's take on it.
the primary purpose of this letter is to pave the way for a limited relationship.
i want to invite them to my son's celebration for finishing his leukemia treatment.
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azor
I will be sending a letter to all my siblings in the next couple of weeks, and wanted everyone's take on it. The primary purpose of this letter is to pave the way for a limited relationship. I want to invite them to my son's celebration for finishing his leukemia treatment.
"I hope this correspondence finds you all well. I'm writing here to reach out for a relationship with my family. I love you all, I worry about you, and want nothing but the best for you as I am sure you feel the same for me.
I know where you all stand, as I at one time was in the shoes you now wear. I am no longer wearing those shoes nor will I ever again as I cannot unknow what is now known. I'm not interested in converting anybody. I have not started my own group, nor am I affiliated with any other group. As a matter of fact I have lost all of my friends with the exception of my best, my wife. I knew this would happen, that is why I did not make my decision lightly. I have made it after much research, and primarily based on principle. Not hurt feelings, disillusionment, or misunderstandings.
I believe we are all grown up enough to show respect for one another as human beings. I hope we can be around one another and not discuss religion. Whatever one believes. One thing for certain is time lost cannot be regained. We are who we are at the moment and not the same person at any other time. I miss you and your families. I'm sure you feel the same. Kids after all are only kids once in their life. I was hoping my children could have relationships with Aunts, and Uncles that I was not privileged to have growing up. Much of this due to petty differences between our parents and their siblings. I now know where that judgemental-ism stems from.
I know you all have your opinions about what happened with my family. You are likely partially correct. Almost losing Adin to leukemia played a large part. Not the part you likely believe though. I am not angry with anyone or anything.
The necessary parting from the group caused by Adins quarantine gave me time to think, without being told how to. This along with insufficient answers that I was looked down upon for questioning, caused me to go on the path that I am now on. If it were not for my children I would stay in the group even as an unbeliever. So as not to lose everyone I ever knew. This has been a lonely journey, but my children, and principles are worth it to me. Now that I know what I know, I cannot in good conscience potentiality put them in a position that I am now in. Having to choose between relationships and conscience.
All of this being said I value peace as well, and hope we can all continue to be family and leave religion at the door. I have waited to write all of you until Adins treatment neared it's completion. As I am planning a party to celebrate the completion of his treatment that I would like you all to attend.
I have laid it all on the line here. Any one of you can forward this to my former congregation, and you know where that leads. I respectfully request that you keep this within our immediate family so as not to further harm our Mom, Me, Ruthy, and My Children. The only grandparent my children can have a relationship with. With this in mind, I hope none of you ever have to bare a fraction of the guilt I will carry to my grave for offering a life on an altar that was not mine to offer. I am not my child's owner just a steward."