to continue....
We then began the series of further tests and visits to surgens.Also being good dubs we were in nose deep with the blood issue.We were told at one point that she probably has six months to live.
Well after another couple weeks of hell we left for california for her brain surgery,
Which actually went better than we expected because her speech wasnt affected as they thought it might be.So then back home and off to onocoligist.
To back track a little I was getting some support from those at the hall but my husband was very uninvolved for the most part in this process.But thats a whole nother story.
T went thru radiation therapy for a bout 6 weeks i think it was. And durring this time her personality changed alot.I remember going to the radiation therapist and crying because I didnt understand why she was changing in her personality so much.
After the radiaiton was done she was back to school and though no sezures she was unable to pick up anything new in school.She ended up in special classes because she couldnt follow in the regular class,And she was having some social problems as well.
She became very hard to reason with and so hard headed about very stupid things that it was difficult to deal with her sometimes. as she went thru my divorce and my disfellowshipping it definatly made it even worse especially sinse this was durring her teen years. and her abilities eventually got to about 4th grade level and stopped there.
She kept going to meetings as I had told the girls it was there choice.
But she moved out in a huff at 18 and I was very frightened for her.She got involved with a stange non witness family and moved around quite a few times in the next year or two but was very determined to do things her way.So I had no choice I let her and tried to be there for her when she got into tough stuff.
Eventually after living with a guy for about 6 months she got pregnant.I was upset but told her I would be there for her And that I would help in whatever way I could.
she avoided those from the hall so wasnt disfellowshipped, at her first ultrasound they found the baby had a heart defect.we all cried and did alot of reading on this defect and found that the baby was viable.We had specialist and surgeon all ready and lined up she and I became very close and I was there when her son Tyler was born.she said to me MOM I have a Baby He was perfect in every way except for his heart that is.
When he was three days old the were going to do surgery on his heart to manage his defect I was the only one there with T even babies dad didnt show up till later.
Tyler passed away on the table because the bypass machine malfunctioned while he was on it.We were devastated! She said to me MOM my baby is DEAD, I felt so helpless as we followed them into the room to see him after he was gone And i picked him up and handed him to his mother because i felt she had to hold him to feel him being gone.It was the hardest thing I ever have done.
She and I went to grief counseling together as Tylers dad was no longer in the picture very quickly after tylers death.
Soon after that T began going to meetings again within about a year and a half she was engaged to a brother and no longer speaking much to me, She got married and The wedding was very tough for me as I was not to be at the reception and was shunned at the wedding.
So then within the next year she was again pregnant.... again im taking a break,,,