Crappyassed week (Athsma, kidney problems for my little boy!!)

by JWdaughter 13 Replies latest jw friends

  • JWdaughter
    JWdaughter

    Ok, Monday I woke up with a killer backache. . .turned out I sprained my back and was to get to the Chiro again the next day. . .except, my 6 yo was in the middle of a hideous athsma attack from mon night on. . .doc on tues got him on prednisone and "quiet" for the rest of his spring break (wahoo). . .so, missing chiro on tues, wed, (treatments frequently)on friday, he has a tummy ache and it moves into his vomiting and total pain and nausea. He has this about once every 3 months, but this bout is quite awful and he is gasping with pain. We have had him diagnosed and basically, there is/was nothing to be done. . . or so we thought. This one went ON and ON, he had temp. that looked hypothermic for several hours and moved to normal in 2 hours, and while the vomiting stopped, he was still feeling sick on Friday, so we got him into the doc that afternoon. He was told he needed to pee in a cup and get some blood work done. I was talking to him and mentioned how his pee is probably really yellow since he hadn't been able to get fluids down. He casually tells me that when he peed earlier at the docs office, it was RED. That was a new one on me, and he said the first time it happened. The sample for the doc was likewise quite red, and his blood readings did not indicate an infection, but that something was caterwompous. His tummy and lower lungs were too quiet for doc. Sent to childrens hospital ER for CT scan. Meantime, kid has his appetite back, and trouble breathing. We were at ER for six hours and he wasn't fed, and it was 2 hours before he was given breathing treatment (pissed that I even had to ask, with as often as nurses were in there looking at his 93% oxygenation!!) So, the CT scan shows a very large abnormality in his kidney/ureter and we are seeing specialist tomorrow ASAP---because NONE of their urologists answered their call on Fri night!!! I don't think the ER guy was sure he should let us go, but didn't see any urgent reason to keep us. I hope he made the right call. . . so today he is feeling good, but obviously whatever is wrong is still wrong. We were just lucky that he had dramatic enough symptoms to lead the docs to the (or at least A) problem that they can treat.

    We are likely facing surgery at least. I hope this is more ureter than kidney related. I don't want him to face transplants (we already knew he had hydronephrosis since before his birth, but all the checkups till Fri were normal and showed nothing to be alarmed about.)

    So, he is out of school so much this year, I am glad he started out so smart or he would be really really behind. He is likely to be out even more this week if we have more tests and/or surgery scheduled. I am seriously considering homeschooling him the rest of the year just to make sure he isn't missing something important. I am already finding the school lax about his athsma meds, I hesitate to send him with urinal or anything else that they might disregard and should not!

    Sorry for the rant. I am ticked, tired, sore and scared. NOT in that order. I am also being totally bitchy, refused to go to family easter after making a bunch of food and actually doing my hair, because DH pissed me off. He deserved it, but the kids didn't it. I am not handling any of this well and have not been for weeks really. This is starting to feel like the straw. . .and I don't even know how bit it is yet!

  • agapa37
    agapa37

    hang in there, life is full of ups and downs. Seems as if you are experiencing the down part.......which only leaves the upside to come

  • cruzanheart
    cruzanheart

    ((((JWdaughter & son))))

    Nina

  • Abandoned
    Abandoned

    ((((((((((((((((((((JWdaughter))))))))))))))))))))

  • Confession
    Confession

    Ugh... So sorry, JWDaughter. Now I'm sorry I interrupted your last thread with my own rant. I clearly wouldn't trade places with all your going through. I'm sending positive thoughts your way.

    Love,

    Confession

  • JWdaughter
    JWdaughter

    Confession, you can rant whenever you need to!!! You all know I will launch into one at the drop of a hat:)

    Brendan is 6 and the sweetest little boy you could want to know. He is ornery enough to be real, but sweet enough that often you totally forget the ornery. He is really confused by what is going on, and I am trying to reassure him when I don't even know what to reassure him OF yet. I don't know how truly serious this is, but I do know that it can GET serious if it has advanced enough.

    Brendan has had what they thought was cyclic vomiting most of his life. Used to be more frequent, but now it is less frequent but more painful. Hell of a trade off! Anyway, because of the timing of all this, I am beginning to think that we are dealing with one problem that has been misdiagnosed, rather than the two (cyclic vomiting and hydronephrosis) I think that the kidney issue has been causing the pain all along. Which is scary since the vomiting has been going on since he was breast fed (until 3 mos-then bottle fed). I hope I am wrong. I am afraid I am right. I am trying not to speculate too much until I see the pediatric urologist tomorrow.

  • exwitless
    exwitless

    Sorry to hear about your son's kidney problem. I can totally relate, because our son (now 9) was diagnosed with hydronephrosis and megaureter before he was born. When he was 10 days old, we took him to a pediatric urologist at a children's hospital. From then on, it was an every 2-4 month trip to see the doctor and have oodles of tests done. They kept hoping it would resolve on it's own (80% of cases resolve by age 2 or 3), but it just kept getting worse. His kidney function was compromised and his right kidney was so enlarged it was at risk for rupture if he fell or got bumped in the side. So finally at age 4, he had to have surgery to correct the problem. They had to reimplant the ureters in new places on his bladder, surgically taper the right ureter because it was so stretched out, and excise 3 diverticuli from his bladder. He was in the hospital for about 3 days, and had a catheter for about 10 days. He had to have a couple of other outpatient surgeries in the months after that because of a complication, but overall it made a huge difference in his kidney. Now he just has to go about every 18 months for an ultrasound. So far, so good.

    Sounds like your son has probably been worsening over time without having any symptoms until now. Poor guy! I feel for him. Whatever you do, see a good pediatric urologist for this. From the sounds of it, he may need to have surgery to correct it, but it won't be until they can guarantee he doesn't have an active infection. I'm sure he'll do fine - and you will too.

    Keep us posted and let us know what their plans are for him. Feel free to PM me if you want to!

  • Hortensia
    Hortensia

    wow - I am so sorry. Hope you will share what the doctor has to tell you and what happens next. Poor little guy - and poor you! I don't have anything useful to say, but I really feel for you.

  • fullofdoubtnow
    fullofdoubtnow

    ((((((((((JWdaughter and son))))))))))

    I am sorry to hear this, I hope everything turns out well for you

    love

    Linda

  • ex-nj-jw
    ex-nj-jw

    (((((((((((((((((((JWdaughter))))))))))))))))))

    I hope your son is ok, I'm very suprized that they discharged a 6 year old with those symptoms????!@!!!!! And over the weekend!!!!

    Especially if he has a history of kidney disease!!!!!

    Please let us know what the doctor says today!!!! So, on to you, how are YOU feeling??? I and all 3 of my children have asthma so I know what you are going through. Take care of your back, get to your CHIRO ASAP.

    nj

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