cross your fingers for me (page 3)

Lady Lee

Does this mean you'll be able to put the wheelchair in storage? I hope so.

I don't think so. There seems to be an underlying problem. If I have no burning pain and walk too far the other problem kicks in and makes walking impossible (like walking on a bed of sharp rocks). And DRs can't find any reason for that either - except for the structure of my feet (very high arch and very high instep as well as Morton's Toe (second toe is longer than the big toe)

I will be happy if the new meds just lower the burning pain so I can sleep. If I'm not sleeping it becomes harder to cope with the other problems.

I don't remember who suggest EM but I want to thank them.

Es

Thats fantastic news, must have been great to sleep with a sheet on your feet. Hope it continues to help

es

PEC

I hope the medicine continues to help.

Philip

Snoozy

That is so great..It's a shame it takes them so long to find a med that helps.

I too had RLS for years..didn't know what it was and neither did the Dr I went to.(Neurologist ) He prescribed Amtrypteline?(SP). When I noticed it was for seizures I refused to take it. I just suffered. Hubby couldn't understand why I could no longer go on long car rides unless I fell asleep until we got where we were going..even then I would wake up crazy.

Funny thing is it didn't bother me if I was driving or walking but let the legs be still and...

I noticed they have new meds out for it now and I am sure the Drs. are aware of the problem now. But it has slowed down a lot and I'm trying to see if any foods trigger it.Anyone you talk to (that doesn't have RLS ) says it is from poor circulation..but that has been proven to be false.

I hope your meds keep working for you and maybe someday they will find a reason for the problem..

Snoozy..who just found out our Walmart and Target stores have generic prescriptions for $4. and $5. dollars..

LearningToFly

So sorry youve had such a struggle Lee It is really awesome that you have found something that is making a difference, I am crossing my fingers and toes that it continues.

Please be careful.. I had a gasp reading of your cabinet crash.. I am glad you were not harmed.. and also glad to read you didnt lose to many treasures in there.

Hugs and keep healing

LTF

Twitch

Lady Lee

My fingers, toes, arms, legs and eyes,.....

Nosferatu

This is great news! I'm so happy you're feeling relief! I remember how bad it was for you when you lived here. I hope things keep going uphill for you.

Lady Lee

snoozy

amytriptiline is an anti-depressant. One of the known side-effects is that it dulls pain in many people

Gagapentin and Lyrica are both anti-convulsants. So I thought it was strange that they would prescibe it for me. But it was descibed to me this way.

When a person has a seizure the abnormal activity is in the head.

When it is nerve nerve pain the abnormal activity happens in the nerve site - in my case my feet. But it also seems to work for shingles, trigeminal neuralgia, diabetic neuropathy and peripheral neuropathy (the one that affects me).

If it works I don't care what its original use was.

The Lyrica for me was great for two weeks but then the pain was back and I became very unsteady on my feet - staggering around and using the walls to steady myself. Then my left arm started to jump uncontrollingly. A small tremor is one thing but to see your arm jumping around 8-12 inches - that was freaky so I stopped them. I was on the lowest dosage so I didn't have to wean myself off them.

I don't want to be in a situation where I have to take other meds to deal with the side-effects of the pain meds.

Thanks for all the crossed body parts but if you all start typing funny we will know why

Sassy

amytriptiline is an anti-depressant. One of the known side-effects is that it dulls pain in many people

I used to take that for migraines.. it was also what I tried to OD on back in 2000..

I'm glad you still seem to be getting some relief Lee... I hope it continues..

cross your fingers for me

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