Posts by IWillBeDubbedNoMore

sadly, if jw's rely too much on the hope that certain drugs that boost production of red blood cells, this new danger leaves them with even less viable options.

rabbit.

november 08, 2007 </form>anemia drugs change black box warningfda approves revision to warning label for procrit, aranesp, and epogen anemia drugsby miranda hitti.

IWillBeDubbedNoMore

Hi babygirl75

I hope you are doing well. I had taken Epogen for, probably six years. Now I have calcification of my aotic valve. I don't know if there is any connection or not

11

Bad News -- FDA Warnings for Anemia Drugs

by Rabbit in

sadly, if jw's rely too much on the hope that certain drugs that boost production of red blood cells, this new danger leaves them with even less viable options.

rabbit.

november 08, 2007 </form>anemia drugs change black box warningfda approves revision to warning label for procrit, aranesp, and epogen anemia drugsby miranda hitti.

Wow .. That is scary.... I was on dialysis for over twelve years. I was taking Epogen for quite a few years because I wouldn't allow them to give me a transfusion. I wish I would have known this then. Thank you for this information.

I had a transplant almost 14 years agoe and my doctor has been talking about starting me on Epogen again. I will bring this to his attention. Thank you

5

Teenage witness records with Johnny Cash's son ... needed permission

by IWillBeDubbedNoMore in

jw
friends

http://www.seattleweekly.com/2007-11-07/music/the-teenage-jehovah-s-witness-and-his-tribute-to-the-man-in-black.php.

.

he had to get permission from his congregation.

IWillBeDubbedNoMore

http://www.seattleweekly.com/2007-11-07/music/the-teenage-jehovah-s-witness-and-his-tribute-to-the-man-in-black.php

He had to get permission from his congregation

12

Dialysis help...

by babygirl75 in

jw
friends

hey everybody..it's been a while since i've had a chance to post.

hope all is okay.... some of you may or may not remember from my earlier post that i had breast cancer last year and went through chemo.

well, my kidneys have been slowly failing since i was 17 and they got worse a few months after i had my son.

IWillBeDubbedNoMore

My heart goes out to you babygirl75

I don't know if my experience will aid you or not, but I hope it does. I currently have a transplant, but I was on dialysis for over twelve years, both peritoneal and hemo. For me personally, C.A.P.D. was better than hemo. Hemo involved spending three to four hours three times a week at a facility. Rain or shine. The day of my treatment was a very exhausting day. After treatment I would feel tired and needed to rest. The next day I felt like doing things. Unfortunately, all the time I was off of dialysis, my body was building up toxins. This caused me to feel tired. Plus my body accumulated fluids until the following treatment. I found that I only had three good days a week. Those being the day after each treatment.

While on c.a.p.d., I had to change a bag four times a day everyday. Having the fluids in my peritoneum continuously allowed my body to always receive treatment. There was less strain on my body as compared to hemo. C.a.p.d. worked more like my own kidneys. I felt better on capd. I didn't have the exhausted days that I had on hemo. I wasn't confined to one location threes times a week either. I could basically go anywhere that I wanted. I would even change a bag at work. If I wanted to go traveling for the day, I would change in the car. Later I bought a van for that purpose. I only took one major trip while on dialysis. That was to Disney world. I had relatives in Florida, so, I had a supply of treatment bags delivered ahead of time. I changed in the car during the day and the hotel at night, and had a wonderful time.

Everyone is different, so you need to decide if you are the type of person who wants to have the main responsibility of your treatment or would you prefer the medical staff doing it. If you prefer not having the responsibility than hemo would be better for you.

When I received my transplant, they had just started offering another choice with peritoneal treatment. Instead of four bags a day all day long, they offered a machine that would do the work overnight, which could be done at home. That might be another option for you. It would free up your day.

I don't know if this was of any help to you or not, I hope so.

I would recommend that you put your name on the transplant list immediately. I wasted 13 years of my life because of the idiots in Brooklyn. Even though they had reversed their teachings on transplants and said that it was ok, I still worried what God really thought on the matter. I was a good dub. So, I delayed having the transplant for many years. I regret that more than you can imagine. I have a new life since the transplant. My health has returned. My energy level is normal. I highly recommend it.

Whatever decision you make, I hope it is the best one for you. Good Luck and Good Health