HELPING DANSK!

by Dansk 69 Replies latest jw friends

  • crazyblondeb
    crazyblondeb

    http://www.abmdr.org/

    This is the site for the American Blood Marrow Program. It does donate worldwide, not just here.

    Ages 18 - 60.

    shell

  • ex-nj-jw
    ex-nj-jw

    ((((((((((((Ian))))))))))) ((((((((((((Claire))))))))))

    I will register, not sure how it works here in the US but I will find out.

    Keep positive thoughts!!! Don't overdue anything, get plenty of rest!!

    nj

  • Sad emo
    Sad emo

    I was replying to this thread when the site went down yesterday!! I'll try again

    I'm going to go to the regional blood centre next Tuesday. I'm glad they've raised the age limit so I'm not too old anymore

    I'll also see if they'll let me donate blood again as I'm a rare type but got banned years ago because I had low/normal blood pressure at the time and fainted once I expect my BP is higher now though

  • KW13
    KW13

    Dansk, i am a bit worried about how this whole thing goes but if it could save your life i will certainly try find out if i am suitable.

    Please PM me mate.

    From karl x

  • unique1
    unique1

    I am confused Ian, call it ignorance. I am asking because you say you need blood not marrow. Does the Red Cross not have a huge supply of O positive blood they could get the cells from? Or do you have to donate differerently than the way a regular blood donation is done?

  • KW13
    KW13

    Also dansk if you could tell me, is the right blood group type a necessity? because then when i find out mine i can make the necessary plans.

  • Dansk
    Dansk

    Unique 1:

    I am confused Ian, call it ignorance. I am asking because you say you need blood not marrow.

    I don't need blood, I need the stem cells which are found in the blood (and also the marrow, but last time I had my own stem cells they were taken from out of my blood and not my marrow).

    Karl:

    I don't know if one's blood group matters. You'd have to find that out for yourself from the bloodbank. I've already posted about how the procedure is relatively painless, just a needle inserted, one in each arm. It's rather like dialysis whereby one is wired (tubed) up to a filter machine. The blood flows normally, then goes through the tubes and it's here that the stem cells are syphoned off. You'd be sat in a chair for 1-2 hours so take a newspaper/magazines/books to read. It really is simple and you can chat away to friends or the nurses!

    No need to pm you as I believe I've posted enough on this topic already and the information should be available in this thread.

    Thank you to EVERYONE who is seriously considering being a blood/stem cell/bone marrow donor.

    Ian

  • KW13
    KW13

    Thanks for the reply

    i wish you the very best mate.

  • crazyblondeb
  • crazyblondeb
    crazyblondeb

    What exactly is a marrow / stem cell transplant? Simply, it is the replacement of diseased marrow with marrow from a health donor
    infused into a patient’s vein just like a blood transfusion. Within two to three weeks
    the transplanted marrow / stem cells begin to produce normal blood cells in the patient. Is marrow/stem cell transplantation a proven technique?
    Eighteen years ago marrow transplants were done only as a patient’s last hope. Today,
    thousands of lives are saved every year at approved medical centers worldwide.
    Which diseases can be treated by marrow transplant?
    Over 50 diseases including the leukemias, aplastic anemia, severe combined immune
    deficiency, sickle cell anemia and radiation poisoning are treated by marrow transplant.

    What are the actual chances of finding a suitable marrow\stem cell donor?
    The odds are 1 in 20,000 of identifying an unrelated compatible marrow donor.. much higher, however, for patients of minority heritage. You could be that life giving person!

    Are donors matched only against American patients? No, the patient could be anywhere in the world. Many, many American patients have
    found donors from International donor sources. Who can become a marrow / stem cell donor?
    You must be between 18 a nd 60 years old, have no history of hepatitis, heart disease,
    cancer or AIDS, possess a positive attitude and pride in wanting to become a donor,
    and sign a consent form allowing the Registry to include your HLA tissue type in its
    confidential files for future matching.

    And it only takes a simple blood test to get started?
    Once the consent form is signed, YES, it’s that simple. The remaining sample is stored
    to be used for upper level testing if you should match at the first level. Of course, your
    consent to do so would be obtained.

    What does the initial HLA testing cost?
    It costs the Registry $75 to test and enroll a new donor. If a donor cares to donate all
    or part of that cost the donation is acknowledged for tax purposes as allowed under law.

    How is the test sample collected? A "finger stick" collection kit us used to obtain a couple of drops of blood. Complete instructions are included with the kit.

    How do I know if I am a match? If you are found to be a possible match with a patient we will contact you immediately
    and give you the option of proceeding to the next level/s of testing to insure final HLA
    compatibility with the patient.

    Who pays for these tests?
    Not you - the patient or his/her medical insurance does.

    What happens if I am a match?
    If the match is confirmed the transplant can be scheduled but only with your legal consent
    after in-depth counseling and a thorough physical examination.

    Okay, now tell me how my marrow is collected?
    Two procedures are available for marrow collection.
    1 . Peripheral blood stem cell collecction…..You are given small injections of
    Neupogen/Filgrastin for 3 to 5 days to force your marrow to overproduce marrow
    or stem cells which are then released into your circulating blood. The stem cells
    are collected by removing blood from a vein in your arm, passing it through a filter
    system which collects the stem cells and returns the remaining blood to you…a
    4 to 5 hour procedure. 2. Bone marrow harvest ….You are given light general anesthesia so that you feel
    nothing during the procedure. Only 2% to 3% of your marrow is withdrawn from
    the large crest of your hip bone through special sterile needles .. a 30 to 45 minute
    procedure. You may go home the same day or the next day.

    Are there any risks or side effects? 1. Peripheral blood stem cell collection (PBSC) .....You might experience some flu- like
    symptoms, bone pain, or a feeling of heaviness during the injections. These
    discomforts usually disappear soon after the collection is completed. This will
    be discussed in detail with you. 2. Bone marrow harvest...Other than the remote chance of a reaction to anesthesia
    or an infection the risks are minimal. This will be explained to you in detail. You
    may experience some soreness in the lower back for a few days.

    Can I withdraw as a donor any time I want to?

    Up until the time you provide us with your final, legal consent to proceed to harvest- YES!
    But we hope that you would not want to change your mind as too much is at stake for the
    patient needing your help

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