if the child has no hope of survival without the feeding tube, maybe the parents do not want thier child to have such a low quality of life, suffereing a slow emotionally painful death, and painful for the parents too.
Im under the belief that one can leave a hospital or take thier child, any time they want, a hospital is a place for people to go for help willingly, it is not a law.
no one can keep yopu in a hospital,its not a jail .
time will tell. but My heart goes out to the family for all they will go through.