Sleep Disorder Anyone?

by Sparkplug 44 Replies latest jw friends

  • J-ex-W
    J-ex-W

    Delayed sleep phase syndrome-------it's a lesser known sleep disorder...a neurologist can help diagnose it. This is what I have, and you sound similar to me. Also, I get the sleep paralysis and hypnogogia stuff that one poster was talking about. [Or hypnopompic--not sure which...one occurs before actually falling asleep, the other right before waking.

    Mine is the one before falling asleep and, as a kid, I used to mistake it for 'demon' activity (attempted possession--the best explanation my religiously educated 12-year-old brain could come up with at the time, lol!]. I used to silently sing hymns to myself till the sensations subsided. It worked...I'm sure because I was focusing my mental activity on something repetitive that allowed my central nervous system / brain to wind down.

    I've taken a much more rational/ scientific approach to my understanding of it since then--long before learning about the sleep disorders aspect of it. I learned this stuff from a book (almost a decade ago--and identified my own sleep disorder using it)--to finally get official medical confirmation of diagnosis almost a year ago. Delayed sleep phase syndrome is extremely difficult to treat, especially if you have a severe form of it...

    A good book I've found since then about sleep disorders and successful natural treatments is "How to Get a Good Night's Sleep" by Norman Ford. Hope this is helpful to you. I know this not fun!!

  • Sparkplug
    Sparkplug

    Zagor~

    Do you need a strong coffee to wake up fully in the morning?

    Yes in fact I get laughed at because I will drink a double esspresso followed by coffe and an energy drink just to wake up. It does not make me hyper or anything. It barely wakes me. I drink my coffee so strong it can be chewed, but really that is all I can do to get going. My kids make it for me and so did my roommate when he was here. The big joke is to live in this house, a prerequisite is to make Decki (me) coffee. It really helps if I am handed the coffee and take a few swigs when woken up. Right away.

  • exwitless
    exwitless

    Sparkplug-I TOTALLY relate to what you are going through. I have suffered from excessive sleepiness since I was a preteen. It didn't matter if I slept 14 hours a night, I would still be dying to take a nap about 4 hours after waking up. I had a really hard time waking up. No matter how much sleep I got, I could not wake up. I have overslept for work; I would get up and turn off my alarm then go back to bed. I had no memory of doing that. To make it worse, I would often dream I was getting ready for work, so I thought I was! If someone called on the phone and I was asleep, I would answer and talk to them but be totally out of it. Later, I would have a very vague memory of talking on the phone, but I wouldn't know who it was or what they said. I don't know how many times I nearly fell asleep when driving, even if it was only a 15 minute drive.

    Living this way is miserable. Believe me, I know. I suffered for many years with it; asked several doctors about it, and they would give the typical cop out answer: "Get some exercise, take a vitamin, blah blah blah". Or "What do you expect? You're a mom and wife and work full time. Of course you're tired!" They made me feel like I was just whiney and lazy. They had no idea how much of a struggle my life was because of this.

    Finally, I found a doctor who actually listened to me and took me seriously. He ordered a sleep study. It wasn't 100% conclusive, but it was favoring narcolepsy or circadian rhythm disorder. (There is definitely some undiagnosed history of narcolepsy in my mom's family.) My doctor prescribed Provigil. It has been a life saver for me. When I started taking it, I actually felt like I was awake for the first time in 15 years. For once, I didn't wake up and have my first thought be: "How many hours until I can go back to bed?" I could actually wake up and not be in this foggy alternate universe of existance (although waking up is still very hard for me.)

    Sparks-go see a neurologist! They specialize in sleep disorders. They'll have you fill out a questionnaire and probably order a sleep study. Make an appointment and go through with it. Your sleep behaviors are not normal, and you need to get help from a specialist. You will be surprised how much better you can feel if you get it treated.

  • kwr
    kwr

    You need to be examined by a doctor. A possibility is low blood sugar or a serious sleep disorder. You should go to the ER and have your blood checked today.

  • SixofNine
    SixofNine

    But seriously, I think you are just way out of tune with your body's sleep needs.

    You can wake up, when you've had plenty of sleep. Unfortunately, you are able to function pretty well when you stay up to work (or party). I say "unfortunately" because I think this ability has allowed you to ignore the reality of what your body needs for rest.

    If you start getting plenty of sleep, I would not be surprised if you found that you can actually learn to rely on your own internal alarm clock (using a backup, of course). I've gotten to the point that I can do this almost w/o fail, unless I am just totally exhausted from serious sleep deprevation (and I am a total sleep wimp).

    Part of the trick to that is to be able to think seriously about your "inner alarm" time (and the negatives to be had for not getting up) before you go to bed, w/o freaking yourself out to the point you can't sleep.

    I think you might be able to put sleep over work, priority wise, and still end up not really sleeping any or much more than you are now (in terms of total hours per week). And if that is the case, it means you can also spend just as much time working as you do now. Which potentially means that work can be done when you are more productive.

    If you really figure it up, I'd bet that you are getting about as much sleep (per week) now as you would if you slept 7 hours per night every night.

  • J-ex-W
    J-ex-W

    BTW, my sister is diagnosed with restless legs syndrome, my dad (based on his similarity to me--I am guessing) had delayed sleep phase syndrome [DSPS--it's one of the various forms of insomnia]...and my mom recently told me she has perpetual insomnia without taking Ambien CR.

    Also, it can sometimes lead to what may seem like depression or some mild bipolar 2 -type behaviors and, therefore, lead to misdiagnosis and years of wrong--INeffective and/ or damaging!!--'treatments.' People with DSPS are usually wrongly 'treated' for some psychiatric condtition(s) for YEARS, which they don't have, until they get a correct diagnosis. Most of the 'treatments' will actually feed into the problem. A neurologist is better equipped to recognize this problem than a psychiatrist would be, because sleep disorders falls under the neurologist's specialized training.

    However, natural treatments--a combination of them--are, IMHO, the best first line of defense in combatting a sleep disorder. This said, I first started seeing real improvement in my night time sleep within these last couple weeks when we put me on a sleep aid (my request--12.5 mg of Ambien CR). I need this coupled with a stimulant during the day (Adderall XR--just upped it today from 10mg to 15mg, once in the morning)--PLUS LOTS OF COFFEE !!!!!!!!!!!!!!!!!!

    I also employ light therapy (my own way) and specific dietary maintenance. Also--carbs intake factors HEAVILY into the whole equation as well. I'll go into as much detail as you ask me to...but don't want to overwhelm you, so I'll leave it here for now. Hope it helps.

  • Sparkplug
    Sparkplug

    Brother apostate~most asurredly work best late night. Cannot wake up tho. It is almost like I am more awake late at night.

    j-ex-W~ the "paralysis" part of this sounds a bit familiar. Not all the time but quite often when I wake, my whole body wont move. I physically have to be sat up. Moved around. I am going to look into my insurance and see if I have to get a referral for a sleep study. I know my brother got one for his apnea.

    Sparkplug-I TOTALLY relate to what you are going through. I have suffered from excessive sleepiness since I was a preteen. It didn't matter if I slept 14 hours a night, I would still be dying to take a nap about 4 hours after waking up. I had a really hard time waking up. No matter how much sleep I got, I could not wake up. I have overslept for work; I would get up and turn off my alarm then go back to bed. I had no memory of doing that. To make it worse, I would often dream I was getting ready for work, so I thought I was! If someone called on the phone and I was asleep, I would answer and talk to them but be totally out of it. Later, I would have a very vague memory of talking on the phone, but I wouldn't know who it was or what they said. I don't know how many times I nearly fell asleep when driving, even if it was only a 15 minute drive.

    WOW. That is it exactly. I make plans in my sleep, tell my kids they can do stuff. Fight and even make up total bull crap and harm relationships. Of course I don't remember it and half the time I have to ask lil questions to figure out why I am so lost. I let people down because I don't fulfill plans I made, I make it in tardy to work because no matter what I cannot wake until my body wakes. I miss things I wanted to do and I stress myself out thinking I will sleep though imnportant things I need to do. I often do the same as you mentioned and dream I have gotten up and dressed and am at eork before I realise I am sleeping. It soooo sucks.

    Living this way is miserable. Believe me, I know. I suffered for many years with it; asked several doctors about it, and they would give the typical cop out answer: "Get some exercise, take a vitamin, blah blah blah". Or "What do you expect? You're a mom and wife and work full time. Of course you're tired!" They made me feel like I was just whiney and lazy. They had no idea how much of a struggle my life was because of this.

    Yes it is absolutely horrid. and I have gotten all those lectures from my regular doctors. Because I do work so much and I do have a lot of stress and all of the above. But truly, I know this is more than just that. Sometimes if I can keep stress away and try to keep on a very strict schedule I can controle it some. But really, it is not much and has a mind of its own.

    Finally, I found a doctor who actually listened to me and took me seriously. He ordered a sleep study. It wasn't 100% conclusive, but it was favoring narcolepsy or circadian rhythm disorder. (There is definitely some undiagnosed history of narcolepsy in my mom's family.) My doctor prescribed Provigil. It has been a life saver for me. When I started taking it, I actually felt like I was awake for the first time in 15 years. For once, I didn't wake up and have my first thought be: "How many hours until I can go back to bed?" I could actually wake up and not be in this foggy alternate universe of existance (although waking up is still very hard for me.)

    Sparks-go see a neurologist! They specialize in sleep disorders. They'll have you fill out a questionnaire and probably order a sleep study. Make an appointment and go through with it. Your sleep behaviors are not normal, and you need to get help from a specialist. You will be surprised how much better you can feel if you get it treated.

    Will do ASAP. Truly need to get this under control. I also get migraines when stressed so badly that I take preventive and post medicine. Well lately this oversleeping is stressing me so much that I am giving myself migraines right andleft. So lets see how much this sucks. I oversleep and am late to work. So I look bad at work, get written up. So then I get stressed and nerves kick in and I worry that I will not be able to take care of my kids, and that I migfht loose my job. So along comes a migraine. So damn huge I can feel it coming on. If I take medice fast enough I can prevent it...but if not, I am stuck with living hell for hours or days. Either way, the medicine can put me to sleep, or the pain is so bad I can puke. Either way I am sent home, or go home and that looks even worse to work. Looks like I canat handle shit, and a drama queen, freaking hypochondriac and all the other things that make one squirm and get looked down upon.

    So I try again. But seeing I am more stressed out and embarrassed it is multiplied the next day. More stress harder to wake, worse headaches, and worse job conditions. I can't stand it.

  • exwitless
    exwitless
    You should go to the ER and have your blood checked today.

    Sorry, but I don't think you need to rush to the ER; especially if you've had it for many years. Really, though, we're all touting what we think is best for you, but everyone is different, and your treatment needs to be prescribed for YOU, not based on what we all think you have and how you should treat it. Just make an appointment with a neurologist-that's your first step in the process of feeling better. Good luck to you!

  • sass_my_frass
    sass_my_frass

    I don't have the same problem but I can feel for you, re how it affects others: when I'm stressed, such as when I'm in the middle of a study term like right now, I find it difficult to get to sleep and stay asleep, and I'm very restless. Apparently I turn around so violently in bed that I nearly bounce Mr Frass out! (In other circumstances, that would be kind of fun...)

    I don't like to give him a restless night too so I occasionally move into the spare room for the night, and usually go to sleep straight away. I suspect it's just a combination of stress and the fact that I have spent 98% of my life so far sleeping alone and haven't really gotten used to sharing a bed - keeping still, not taking up all the space and the blankets...

    Mr Frass is always sad in the morning when I'm not there. He knows it's not about him, but on some level I'm sure it gets to him. I think I need to find new ways to deal with stress so I can sleep properly.

  • J-ex-W
    J-ex-W
    My doctor prescribed Provigil. It has been a life saver for me. When I started taking it, I actually felt like I was awake for the first time in 15 years.

    I tried to get the Provigil because it messes with JUST the sleep/ wake centers and leaves the rest of the central nervous system alone, but Medical Assistance will not (yet, anyway) approve Provigil for anything other than narcolepsy. I'm hoping that changes soon, but in the meantime, I'm forced to use a stimulant that rev's up the entire central nervous system, even though that means increased nerve pain for another rare disorder I have.

    If you can, try something like the Provigil first, because it's more targeted to the problem.

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