((((Mary))))
I'm so sorry for what you're going through. I don't know if your experience can compare with mine but about five years ago I went to a doctor and said THERE IS SOMETHING WRONG HERE!!!! Just like you. This doctor immediately began to investigate. He found pre-cancer cells in my cervix. I had a colposcopy done. Then my insurance was cancelled.......
Move forward three years. During those intermitent three years I had gone to get pap smears and they always came out negative. But I continued to feel discomfort. Like a heavy uterus ALL THE TIME. Like I felt like I was on my period every single day - yet never got a period. I went to a new doctor. Said THERE IS SOMETHING WRONG HERE I CAN FEEL IT. Sure enough pre-cancer again. So what does this idiot do? He says, "You have to get on the birth control pill." So I am angry and demand at least a biopsy. I get the biopsy. It comes out positive. The doctor puts me on the pill even though I say I want to have a D&C so I can have a baby. Doc says my insurance will not cover it. The insurance's treatment for my condition is getting on the pill! Can you believe it????? The INSURANCE carrier decided what my treatment would be.
So I go back three months later for another biopsy. A different doctor does it half-ass. Didn't move around enough to get a good sample from all around the uterine wall. It comes back fine. The insurance company says I no longer need a specialist and have to go to my general practitioner for regular pap smears. THAT'S IT! No one was going to worry about me. Who cares what happens to me. The insurance company saves money.
So I contact my cousin who is an OB/GYN in Costa Rica. He wants me to go to CR so he can check it all out. Although I wanted to have another baby at this point I wanted it all yanked. I can't go to CR. I have a full time job.
Push forward a year or so. I no longer want another baby. I can't stand the pressure in my uterus. I decide that when I have the summer off I want to go to CR and just have my cousin give me a hysterectomy. Well low and behold!!!!! I found out I'm pregnant. WHAT!!!!? WHY NOW???
So now I'm four months pregnant and don't have a clue. I have had two sonograms which turned out fine. And my amniocentesis was done last Friday and I don't have the results yet. I talked to the doctor and told him I want it all yanked when the baby is born by C-section. He just smiled. Said we would talk later. BTW, I got more than used to the idea of my baby and love it already. But that's not the point.
So I don't know what your story is. But I know how frustrating the medical system is. I think you need to be the squeaky wheel. Get all the information you can. Bark bark bark to get the best medical care you can.
I wish you luck with this. I feel sorry for you. And I hope everything turns out okay.